A couple weeks ago I wrote a comment on FB about having attended a Zoom class on End of Life Options. My comment ended with the paperwork alone would kill you! I came clean in my comments about my husband’s descent into Parkinson’s, a disease he has battled for 9 years now. Because this disease does not actually cause death, we are exploring his options for when he decides he has had enough. In opening up about this, I received incredible support from hundreds of people. I was a bit embarrassed because I feel it is his story to tell, until someone reminded me it is also my story, as his caregiver and spouse.
My ‘coming out’ with the story led me to seeking support for myself as his caregiver. I had been down this road before, as caregiver, and yet how quickly I had forgotten about self-care and self-compassion. In one of my encounters in ‘building my team’ I was asked about my sleep. How is your sleep? I say, it’s fine, as it generally is…that is until it isn’t. Some of my best work has been designed in the night. As example…
Way before the pandemic, maybe 9 months ago, maybe a year ago I had some cloth printed at Spoonflower with words related to taxation. I took it into the wet studio and printed the same words on the whole cloth. I heat set it, brought it into my upstairs studio, folded and placed on the bed of the overhead projector, where it has resided since. After finishing my second BLM piece, I felt like I needed a break before embarking on no 3. The long ago but not forgotten aforementioned piece of cloth came to mind. I pinned it up on my design wall, and nothing happened! I masked off certain sections to give me some perspective, nothing happened. I envisioned trees, but still nothing happened.
Two nights ago I was awake for several hours in the night. I forgot what started the conversation, but somewhere in the depths of those thoughts came divine inspiration. Money growing on trees! This morning I went in and in 20 minutes designed this piece that has languished for well over a year. Tomorrow I will begin the stitching! When someone asks how long this one took me, I can definitely say, a year!
I am humbled, grateful and surprised, how with all the despair in the world right now, that I am able to make art. Just yesterday I felt overwhelmed by the 6 months we have lived in isolation, while others go to the beach, to Vegas, to dinner with friends and on and on and on….because they are weary of isolation. I’m weary too. I miss travel too. I miss seeing friends too. It’s not just about you! Our beautiful West Coast is on fire again, we can’t breathe the air, we can’t meet inside, we can’t go outside, the horrendous vitriol being slung from both sides, and yet somewhere within there is this bright light that seems to need to be making art.
It is a wonder, to me, as well.